My sweet wife. I’d walk through Hell for her, so taking care of kids and a sick lady aren’t really asking much. In less than 2 weeks, she leaves to go cross country to her second brain surgery. A dear and trusted old friend will be accompanying her to this engagement in my stead, but when you have a choice of a humble farmer and a medical researcher as your options, you don’t make the emotional choice. Plus, my spine has become so erratic with weather changes that I might risk ending up trying to make sense through a migraine while evaluating a brain surgeon.
Somehow, this woman still loves me and does not see my shortcomings.
When I got out of the Army, I had been on crutches for a year and been to Walter Reed twice. I had a paper in my pocket that we called ‘The No-Breathing-Hard’ profile that said I wasn’t to stand for longer than five minutes. I was retaught how to walk and issued a cane.
When I got out, I ditched all of that and lived my life. I walked for miles. I carried my own body weight in Merry-Go-Round horses for a summer. I carried weights in the top of a theater and threw road boxes around.
I keep this show on the road when I keep moving. This sedate home-care stuff has to be, at least, part of the problem. When I stop, I fall back apart.
Today was my birthday, and I wished on my 38 candles to get moving again.
Today is my husband’s birthday. This year, like every year he said to not buy him gifts or bake him treats. I bought a couple gifts anyhow, and I looked forward to making him one of his favorite desserts. We are on a tight budget due to my brain surgery in Pittsburgh in exactly 2 weeks, but our pantry is full and I was exciting about making something just for him.
Instead I came face to face again with my disorder, disability, non-stop pain and the exhaustion so all encompassing that it becomes it’s own entity- the ghost owner with the switchblade stabbing into my right ear with each beat of my heart takes it one step farther and presses the fast forward button on my anxiety as well. I find myself awake, pleading with my body to shut down and nap for at least a short time, so I…
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